This antibiotic will ruin you. 

4739Hi there, we need to talk. My name is Amy Moser. I have almost written this post at least 20 times and got too overwhelmed and abandoned it. Well here goes…

The antibiotics you took or are taking for your sinus infection, UTI, skin infection, laser eye surgery…ect…may have already damaged you.

Cipro, Levaquin, Avalox, nearly every generic ending in “quin”, “oxacin,””ox,”…are all part of a large family of antibiotics called “Fluoroquinolones.” The FDA finally updated their warning on these antibiotics as of July 2016. They site “multiple system damage that may be irreversible. Permanent you guys. Here is the link for the warning if you are a doubting Thomas: https://www.fda.gov/Drugs/DrugSafety/ucm500143.htm. Take a gander real quick if you are reading this with an eyebrow raised. Trust me, I wish I had been given the opportunity to soak up this information before it was too late.

In 2010, I took Cipro for a UTI and it changed my life forever. A round of antibiotics literally changed the path I was walking, into a path that I couldn’t even crawl on. Multiple spontaneous tendon and ligament ruptures, spinal degeneration, and arthritis that is widespread. We are talking multiple joint dislocations and surgeries to most of my large joints and spine. Twenty surgeries in the last 7 years if you wanna count. I said T W E N T Y. This class of antibiotics were supposed to be only used as a last resort antibiotics, if all other options had failed. They never were supposed to be given for common infections. They damage the body so seriously because they actually damage the mitochondrial DNA. Those affect all cell function. Fantastic. You now have tissue paper tendons and ligaments. You are a human piñata at a party and life is whacking you left and right. Do you know what it feels like to hear and feel your shoulder pull apart like taffy, or your achilles pop and tear apart like an old rubber band? It gets even better. Flouroquinolones cross the blood brain barrier. This can result in psychiatric events, depression, and suicidal thoughts. I was incredibly fortunate not to have the psychiatric side of this.

Here is another sickening truth…the damage is cumulative. The more exposures you have to these antibiotics, the more damage is done to your body. Not just for some people, ALL people. A hundred percent of people who take a Fluoroquinolone antibiotic, show changes in blood flow to the tendon, cartilage, and ligament in their bodies. Each person has a different breaking point depending on their own unique DNA. Some people fall apart or die after 1 pill. I fell apart after my 4th round of Fluoroquinolone antibiotics in my life and some people are on their 25th round and are still oblivious to what is happening inside them until they break. It might not even be a physical one. It may be a psychotic one. By then, it’s too late. The damage is done.

This was my nightmare. It gets worse. There is no cure. No treatment. No relief. No specialist even. Im telling you…if it hadn’t been for the knowledge that God is ever present and with me…I would have walked out in front of a bus. He is the reason I am sane…well mostly.

I am writing this in hopes that you will educate yourself and your families. Don’t take that antibiotic in ignorance one more time. Don’t take your chances. Don’t be afraid to demand an alternative. You get only one life.

I am convinced that a large portion of why God allowed this in my life, is so that I could use my loud mouth to educate you. To share the blessings and miracles He has given me throughout this journey and to be my obnoxious self for a cause that needs to be shouted from the rooftops. If you take a Fluoroquinolone by choice…please don’t tell me. It makes me have anxiety and it makes me worry about something I can’t control. Only you can control what goes in your body. When you tell me you take these antibiotics, it makes me feel physically ill. If you only understood the risk you are taking, you wouldn’t take it. Save the explanation. There are alternatives if you demand them. I’ve refused these medications on multiple occasions and so has my mom who is allergic to penicillins and Cephalosporins and Sulfa. There are other options if you demand them. If you don’t have Anthrax poisoning, or pseudomonas bacteria…my family doctor will tell you, they can figure something else out.

I am going to share some trustworthy Fluoroquinolone warning links. If you look them up…I am sure you will be glad you did. Do it for yourself and do it for your friends and your family.

 

Over the last 7 years, I’ve been to 3 Rheumatologists, orthopedic surgeons and spine surgeons, physical therapists, physical medicine and rehab specialists and 3 different primary care doctors. There is no treatment but to try to put back together what breaks.

I have seen multiple docs from Mayo clinic and they are in the same boat as the others. They don’t know how to reverse it. They can’t. The science is not there yet. I contacted a doctor from Mayo Clinic in Rochester Minnesota, his name was Jay Smith, and he had been part of a research study of the effects of Fluoroquinolones on the musculoskeletal system in the athletic population. He actually wrote me back when I asked him for a consult and told him I would even fly there for an appointment if he thought he could help me. He said that he didn’t know how to treat it. They know the science behind the damage that Fluoroquinolones cause, but the science is not there yet in how to reverse it.

I will tell you this. I reached an incredibly low and dark place when he responded with this. You have to understand that I have had a miracle. God is what has gotten me through this and I can’t put the credit on anything else. The ministers at my church prayed for me with blessed oil. In the Bible it talks about this in James chapter 5. I had an incredible experience during that “administration.” My son was 8 years old at the time and he had a dream that night where God spoke to him and told him that “He was going to heal his mom, but we had to be patient.” This was 5 years ago. I am hiking mountains regularly now. My body still has many problems but my progress has been a miracle and all my surgeons and doctors will tell you the same. God is the great physician, and He alone is the answer. I did write a book about this. It’s called “The Magnificent Story of a Lame Author.” It is available on Amazon, Barnes and Noble, iTunes, and Kobo. There is also a link directly to Amazon from my blog homepage. I have had countless blessings through this and the credit for the improvement is God’s.

We have to get this information out there. Spread it to everyone you know. Print the FDA warning and show it to your friends and family and even your doctors. Sometimes the warnings slip through the cracks and they don’t know. You could save their lives. Alright people, let’s make a positive difference! Below are further medical study links and warnings associated with Fluoroquinolones. They were sent by a German contact who has compiled this information. Some cannot be directly linked, but if copied and pasted in the search bar, will be accessible.

  1. Ciprofloxacin not only damages cartilage in children and young people, but also in adults:

https://www.ncbi .nlm.nih.gov/pmc/articles/PMC164164/pdf/412562.pdf

https://www.ncbi.nlm.nih.gov/pubmed/10663387 https://www.ncbi.nlm.nih.gov/pubmed/11685846

  1. Cipro causes serious arthropathies in adults:

https://www.ncbi.nlm.nih.gov/pubmed/8453165 → DOI: 10.1177/106002809302700308

https://link.springer.com/chapter/10.1007/978-3-642-72450-3_21 http://www.zeitschrift-sportmedizin.de/fileadmin/content/archiv2003/heft06/Martinek.pdf
Tendon damage and tears (and other muscle-scelettal issues) can occur months after discountinuation of the medication:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4080593/

https://www.ncbi.nlm.nih.gov/pubmed/7860672

https://www.ncbi.nlm.nih.gov/pubmed/20215992 → DOI: 10.1097/CND.0b013e3181d23a9c https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4080593/
For patients with Myasthenia gravis the use of this medication can lead to death:

https://www.arznei-telegramm. de/html/2012_09/1209404_01.html
https://www.ncbi.nlm.nih.gov/pubmed/21879778 → DOI: 10.2165/11593110-000000000-00000
The medication can lead to myalgies which require emergency treatments:

https://www.researchgate.net/publication/24196595_Ciprofloxacin-related_acute_severe_myalgia_necessitating_emergency_care_treatment_A_case_report_and_review_of_the_lite rature

Cipro can lead to lasting vision disorders:

https://www.ncbi.nlm.nih.gov/pubmed/17300586 → DOI: 10.1111/j.1442-9071.2007.01427.x

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2910230

Central nervous system disorders including suicide:

https://www.ncbi.nlm.nih.gov/pubmed/18677343

https://www.researchgate.net/publication/51139497_Quinolones_Review_of_Psychiatric_and_Neurological_Ad verse_Reactions.

https://www.highbeam.com/doc/1P3-1590140841.html
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4202555/

http://journal.publications.chestnet.org/article.aspx?articleid=1064665

https://www.ncbi.nlm.nih. gov/pmc/articles/PMC2360825/pdf/postmedj00087-0063.pdf http://www.psychosomaticsjournal.com/article/S0033-3182(07)71051-4/abstract https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3513220/

https://www.researchgate.net/publication/301640337_Quinolone_antibiotics_and_suicidal_behavior_analysis_ of_the_World_Health_Organization %27s_adverse_drug_reactions_database_and_discussion_of_potential_mechanisms

Heart ailments and arrythmias:

https://www.ncbi .nlm.nih.gov/pubmed/11505790 → DOI: 10.1055/s-0031-1300083

https://www.ncbi.nlm.nih.gov/pubmed/17388913 http://www.bvmj.bu.edu.eg/issues/25-1/13.pdf

https://www.ncbi.nlm.nih.gov/pubmed/11772147

https://www.ncbi.nlm.nih.gov/pubmed/18319500

http://www.oapublishinglondon.com/article/1372 https://www.ncbi.nlm.nih.gov/pubmed/15851230

https://www.ncbi.nlm.nih.gov/pubmed/19387967

http://www.revespcardiol.org/en/a-case-of-prolonged-qt/articulo/13146861/  https://www.ncbi.nlm.nih.gov/pubmed/21075583 https://www.ncbi.nlm.nih.gov/pubmed/16386810  https://www.ncbi.nlm.nih.gov/pubmed/18319500  https://www.ncbi.nlm.nih.gov/pubmed/22259166  https://www.ncbi.nlm.nih.gov/pubmed/21271486

Hypoglycemia and Diabetes:

https://www.ncbi.nlm.nih.gov/pubmed/17911203 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4410896/

http://cjhp-online.ca/cshp/index.php/cjhp/article/download/345/338&sa=X&scisig=AAGBfm2eyUpxyI0JDWKX7F3Wo4nv VpRTqA&oi=scholarr

http://www.amjmed.com/article/S0002 -9343(09)00871-7/abstract

Long-lasting  problems of the gastrointestinal tract:

https://www.ncbi.nlm.nih .gov/pmc/articles/PMC2586385/ http://www.nature.com/ja/journal/v64/n1/full/ja2010137a.html http://www.sciencedirect.com/science/article/pii/S1198743X14001025

Serious kidney and u-tract problems, including kidney failure:

http://www.jurology.com/article/S0022 -5347(05)67379-X/abstract

https://www.arznei-telegramm.de/html/1995_12/9512120_01.html

https://www.ncbi .nlm.nih.gov/pubmed/12911170

Liver failure even after a single dose of Cipro; damages to the gall bladder;

https://link.springer.com/article/10.1007/s100960100513 DOI:10.1007/s100960100513

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5036381/

http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(94)91624-1/abstract → DOI:

1016/S0140-6736(94)91624-1

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4026643/

Cipro inhibits the very important liver enzyme CYP 3A4

https://www.researchgate.net/profile/Elliot_Hersh/publication/8642018_Drug_interactions_in_dentistry_The_i mportance_of_knowing_your_CYPs/links/53db72090cf2a19eee8b7819/Drug-interactions-in-dentistry-The-importance-of-knowing-your-CYPs.pdf

https://www.ncbi.nlm.nih.gov/pubmed/21190921 https://www.aerzteblatt.de/pdf/113/21/p18.pdf?ts=25.05.2016+09%3A40%3A08

Incidents of blood thinning and fatal bleeding

http://link.springer.com/article/10.1007/s00063-003 -1268-7/ → DOI:10.1007/s00063-003-1268-7 https://www.ncbi.nlm.nih.gov/pubmed/15070128 → DOI: 10.3171/jns.2004.100.4.0710 https://www.ncbi.nlm.nih.gov/pubmed/17045852 → DOI: 10.1016/j.jcf.2006.08.002

Cipro given during pregnancy can cause either termination of pregnancy or deformities of the embryo:

http://www.sciencedirect.com/science/article/pii/0301211595025243 → DOI: 10.1016/0301-2115(95)02524-3

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC105599/

https://www.ncbi.nlm.nih.gov/pubmed/15307429 → DOI: 10.1016/S0035-9203(03)80032-9)

https://www.innovativepublication.com/admin/uploaded_files/IJPP_3(4)_225-226.pdf

http://jms.org.br/PDF/v27n1a05.pdf

http://www.sciencedirect.com/science/article/pii/0301211595025243 → DOI: 10.1016/0301-2115(95)02524-3

http://bmjopen.bmj.com/content/bmjopen/2/3/e001077.full .pdf

Reproductive toxicity (reduction of sperms); Reduced fertility

http://www.diss.fu-berlin.de/diss/servlets/MCRFileNodeServlet/FUDISS_derivate_000000012195/Dissertation_Agnes_Foest.pdf

http://www.bioline.org.br/pdf?rm08012

https://www.ncbi.nlm.nih.gov/pubmed/17430273 https://www.ncbi.nlm.nih.gov/pubmed/10623489 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3850316/ https://www.ncbi.nlm.nih.gov/pubmed/23420823

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4312808/
Medication risks which are omitted from the package insert:

Cardiac death through Cipro

http://www.bmj.com/content/349/bmj.g6196

http://www.medscape.com/viewarticle/834217
Lesions of the aorta

http://bmjopen.bmj.com/content/5/11/e010077.full https://www.ncbi.nlm.nih.gov/pubmed/26436523

Life-threatening rhabdomyolysis

http://www.arznei -telegramm.de/html/2013_05/1305046_02.html
Lethal Thrombocytopenia

https://www.ncbi.nlm.nih.gov/pubmed/12451346 http://www.tandfonline.com/doi/abs/10.1080/09537100801993040

Multisymptomatic Syndrom which leads to permanent handicap

http://www.saferpills.org/wp-content/uploads/2014/10/FQ-induced-serious-persistent-multisx-adverse-effects-BMJ-Case-Reports.pdf

Retinal detachment with permanent vision loss:

http://jamanetwork . com/journals/jama/fullarticle/1148331 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4183446/

https://www.ncbi.nlm.nih.gov/pubmed/24170197 https://www.ncbi.nlm.nih.gov/pubmed/26967005

Uveitis and Optikusneuritis:

https://www.ncbi.nlm.nih. gov/pubmed/25275293 https://www.ncbi.nlm.nih.gov/pubmed/17300586 https://www.arznei-telegramm.de/html/1993_12/9312134_03.html
Fixed pharmaceutical reactions:

https://tspace.library.utoronto.ca/bitstream/1807/48250/1/dv08224. pdf

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4408714/

 

-6323;year=2017;volume=83;issue=1;spage=108;epage=112;aulast=Gupta

Guillain-Barré-Syndrome

https://www.ncbi.nlm.nih.gov/pubmed/24472364 → DOI: 10.1016/j.annepidem.2013.12.009

von Willebrand-Syndrome

http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(94)92748-0/abstract → DOI: 10.1016/S0140-6736(94)92748-0

https://www.ncbi.nlm.nih.gov/pubmed/15070128

Permanent hearing loss

http://www.hc -sc.gc.ca/dhp-mps/medeff/bulletin/carn-bcei_v14n1-eng.php
Systemic Lupus erythematodes.

http://www.ejmanager.com/mnstemps/36/36-1394092468.pdf?t=1411548312

Pyoderma gangraenosum

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3481820/

Stomatitis

http://databankws.lareb.nl/Downloads/kwb_2011 _1_fluor.pdf

Manic disorders

https://www.ncbi.nlm.nih.gov/pubmed/11799346 https://www.researchgate.net/publication/51139497_Quinolones_Review_of_Psychiatric_and_Neurological_Ad verse_Reactions

Pancreatitis

https://www. ncbi.nlm.nih.gov/pmc/articles/PMC4026643/

Toxic and fatal epidermal Nekrolysis

https://www.ncbi.nlm.nih. gov/pubmed/9310730 https://www.researchgate.net/publication/289163593_Fatal_ciprofloxacin-induced_toxic_epidermal_necrolysis_Lyell_syndrome_A_case_report_and_review_of_the_literature https://www.ncbi.nlm.nih.gov/pubmed/15115708

https://www.researchgate.net/publication/276439054_Fatal_case_of_ciprofloxacin_induced_Toxic_epidermal_n ecrolysis

Fatal Vasculitis and frequency of vasculitis

https://www.ncbi.nlm.nih.gov/pubmed/19669086 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5208583/

http://onlinelibrary.wiley. com/doi/10.1111/j.1398-9995.1997.tb02612.x/abstract → DOI: 10.1111/j.1398-9995.1997.tb02612.x

http://www.cjhp-online.ca/index.php/cjhp/article/viewFile/508/505 http://onlinelibrary.wiley.com/doi/10.1111/j.1398-9995.1997.tb02607.x/full https://www.ncbi.nlm.nih.gov/pubmed/2911319 https://www.ncbi.nlm.nih.gov/pubmed/7645562

https://academic.oup.com/ndt/article/22/2/660/1885713/Ciprofloxacin-induced-ANCA-negative-cutaneous-and

https://www.ncbi.nlm.nih.gov/pubmed/8262601 https://www.ncbi.nlm.nih.gov/pubmed/7941927

http://journals.lww.com/pidj/Citation/1995/06000/UNUSUAL_ADVERSE_EFFECTS_OF_CIPROFLOXACIN__PURP URIC.17.aspx

Gangrene which requires amputation

https://www. ncbi.nlm.nih.gov/pubmed/19892516

 

 

Advertisements

3,088 thoughts on “This antibiotic will ruin you. 

  1. I understand completely and am so glad you posted such detailed information!! I definitely will be reading up on this!!
    For me it started with sinusitis and Levaquin. This occurred several times in one year and I began having problems with constant left hip pain. I couldn’t abduct my left leg at all when laying down. MRI showed minimal tears in several hip tendons and ligaments on both side , but left was worse. Did a few rounds of physical therapy, including aqua therapy. When the therapist was performing a routine exit exam she had me abduct my leg while laying on side, which was somewhat better, and then asked me to resist her pushing against it. Suddenly something snapped in my Lt hip and I had immediate pain. I do not blame her at all…but it completely tore my gluteus medius and minimus in two. Needless to say, I had to have surgery to reattach the tendons & ligaments. That leg is getting better but the Rt one is now deteriorating and I ultimately had to quit (retire early) my 30 yr job as radiology technologist. There were days I could barely walk out of the department at end of the day.
    Glad you are so much better and hope they start to realize the pandora box that they created with these drugs!!

    Like

  2. What type physician(s) would you see to be evaluated if this is a potential explanation for my symptoms. I was diagnosed in with fibromyalgia and my primary care & neurologist are just treating the symptoms but I am getting worse. Especially with the neurological aspects.

    Like

      1. You can try using D-Mannose and pro-biotics. Also high doses of Vitamin C, as high as you can tolerate. There are various herbs good for it too. Uva Ursi, Horsetail, Corn silk, Oregon grape root. nettle, goldenseal.

        Liked by 1 person

      2. Cranberry supplements are a good preventative. The NP I go to for annual pap etc recommended it.
        She specializes in women’s health.
        Kathy

        Like

      3. Have you tried detoxing to get rid of some of the accumulation? It’s helped me with other issues. I’ve gone through natural practitioners though….I don’t think MDs are equipped for that alternative therapy.

        Liked by 1 person

      4. Joan, they are flushed out of your system in 24 hours. The damage is done while they are in your system. There aren’t any Fluoroquinolone toxins to rid yourself of. Like for me, I didn’t start falling apart until 2 weeks after my last dose and the damage had already been done 2 weeks before.

        Like

      5. Thank you for this article. It explains a lot! I know of a magnificent alternative to antibiotics call Trusilvr. The formulator is a man named Dr Gordon Pedersen who is the world leader in silver technology. There is a protocol for almost any infection. Whether it be bacterial, viral, or fungal. It is the only silver product that is ph balanced and considered completely safe for consumption. We take it as a family with amazing results from pink eye, UTI’s, coughs and colds, etc.

        Liked by 1 person

      6. Where does Bactrin fit into this? Last UTI I had-that’s what they gave me? Had to quit after four days worth-messed up tummy-heartburn-general malaise. Any ideas?

        Like

    1. Bobbie Blevins, if you took any of the fluoroquinolones prior to onset of your symptoms, it’s quite likely that your problems are from the antibiotics. You might want to join a FB support group and discuss your history of problems & medications there for some friendly advice. As Amy stated, there are no test to definitely prove, but the fact that more meds make it worse is also a sign that it could be fluoroquinolone toxicity. Probably a lot of fibro patients are really fluoroquinolone toxicity victims and for us RX & OTC drugs very often just make us worse. https://www.facebook.com/groups/floxies/

      Like

      1. Perhaps you could encourage and direct people with concerns to seek the advice of qualified medical professionals, 2nd opinions and any concerns anyone has reguarding their health should be discussed with people who have educated themselves at great lengths and are required to be certified or licensed, first and foremost. Rather than dkirect them to a room full of well meaning individuals sharing opinions all simply based on hearsay of personal experience. To offer any advice or share an assumption is not only irresponsible, and wreckless it could possibly place others at risk. We all have good intentions but need to realize that it is another persons life that we may very affect. Educating ourselves and doing research as well as dealing with those who have devoted their life to and educated, research and continue to are the best place to start, and while medical professionals often do not endorse or suggest alternative treatment options they are an option to be considered, educating ourselvs and doing research on. Best wishes and the best of health to you

        Like

      2. That “room full of well meaning individuals sharing opinions all simply based on hearsay of personal experience” quite often has much more to offer than some/most docs who are skeptical about the effects of these drugs and know little or nothing about how to treat us because there isn’t a drug to prescribe for us or any treatments established to help us unless a test shows damage that can be treated (often the tests don’t show anything but the pain and damage is still occurring in us), but even then docs often want us to take steroids, NSAIDs, psyche & other drugs that make may of us worse. Docs do not go home at night and research studies about the effects of fluoroquinolone toxicity, however, those of us who have been damaged often have plenty of time to do that since we lose our ability to participate in life on the level that we did before being poisoned. These drugs can and do damage mitochondria and that does not show up on any standard medical tests but has been proven in a study using a liquid mass spectrometer to look at the mitochondria in a group of victims, all of whom had a fluorine molecule from the fluoroquinolones adducted to the the mitochondria. That molecule interferes with cellular replication which FQs are known to do to bacteria and cancer cells, that’s how they kill the cells, but it was never studied to see if it damaged human cells. Until the drug companies do more research (which we know they will not voluntarily do) and until the docs quit prescribing it when there are other options, many of us will keep screaming out the warning about the dangers of fluoroquinolones to save our family, friends, acquaintances and even people we don’t know all around the world.

        Liked by 2 people

      3. Kat, Donna is with us on screaming the warning. I am pretty sure that there is a miscommunication going on between messages. Donna is trying to reiterate that we have the right to refuse a treatment, or find another doctor, and she is also saying that we all have to read the information packets before we take anything. I know that you are stating the frustration all of us feel that we can’t trust all the doctors and we should be able to trust them to treat us. I do think that Donna understands our frustration, she is having terrible health crisis due to doctor negligence as well. I think that we all are wanting the same thing. We want everyone to be safe. We want to spread these warnings and we aren’t blaming each other. We are blaming a broken system all around.

        Liked by 1 person

      4. I’m not being argumentative, just pointing out that Donna”s posts defend the docs & nurses and puts blame on us, but we know that many people who end up being poisoned by meds are assured by their docs that the meds are safe, adverse effects are rare, and the when the adverse effects occur we’re told the meds couldn’t have done that, it’s already out of your system, it’s in your head, etc. She suggests we go to docs for help rather than seek others with experience with FQT. That might be good advice for a more typical medical error, but not for FQT that many/most docs don’t acknowledge and even if they do, they don’t know how to advise us about how to manage our issues. I just don’t want someone with FQT to read that and think they should depend on docs, medical system and RX drugs for help. They very likely will be disappointed and harmed even more.

        Liked by 1 person

      5. I understand where you are coming from, but I dont 100% share the same perspective. I’ve had 20 surgeries to pin tendon and ligament that completely detached back to the bone. I’ve had my jaw dislocate and come off my face and had it out back in by doc’s in the ER. I’ve had to have fusions to stabilize my spine for herniation and instability. I couldn’t have gotten where I am today without seeking help from doctors. I have yet to find even one doctor who has an iota of expertise in Fluoroquinolone Toxicity. The naturapaths who proclaim to, have just sought to drain my bank account and they promise nothing in improvements. This situation is unique. I am glad that going the direction you are going has helped you. This direction has helped me. It’s okay for us to forge our way through this however we feel is necessary. So far none of us have found a treatment that has 100% reversed this. Until then, I think we just all do the best we can with the tools we can find.

        Liked by 1 person

      6. Could you explain the sentence where you talk about the study along with the sentence following it? It went a little over my head. Also you said that the drug class can kill cancer cells? Shouldn’t we be celebrating this drug then and fully supporting it? This would be the only drug ever to do that and save millions of lives.

        Like

      7. I’m not sure I can explain it any better, but I can give you the link to the study. You’ll have to sign up on the site to get access but they don’t solicit anything from you afterwards. https://www.academia.edu/7562596/Fluoroquinolone_Toxicity_-_Human_DNA-adduct_Findings
        This study explains it well, but if you don’t understand after reading it, let me know. Oh, about it being good that it kills cancer, I agree, that is a good thing, apparently it didn’t make the grade for common usage. The bad thing is that there were no studies done to see if it damaged human cells even tho there are many studies showing damage to other mammalian mitochondria.
        “A DNA-adduct will subsequently block that corresponding gene’s expression and ability to replicate correctly. This hinders that gene’s ability to encode and correctly oversee the production of the protein synthesis necessary for its associated cell and tissue regeneration, replication, and repair. This is better known as genotoxicity” The significance of this is that our cells are dying and being replaced all the time, but when there is damage to mitochondria and the cells can’t replicate then our bodies begin to deteriorate. Connective tissue is the most quickly damaged structures in our bodies, possibly due to low blood supply.. The quoted info below is from PubMed and explains why many who are poisoned by this class of antibiotics can have body wide pain and structural failure.
        “Connective tissues bind structures together, form a framework and support for organs and the body as a whole, store fat, transport substances, protect against disease, and help repair tissue damage. They occur throughout the body. Most connective tissues have a good blood supply but some do not.”
        “Numerous cell types are found in connective tissue. Three of the most common are the fibroblast, macrophage, and mast cell. The types of connective tissue include loose connective tissue, adipose tissue, dense fibrous connective tissue, elastic connective tissue, cartilage, osseous tissue (bone), and blood.”

        Like

    2. It seems at this point that you might check out some ‘healers’. There are quite a few in your area. You might find some by contacting the Castro Valley Unity Church. They may be able to get you in touch with a few. I am so sorry you are enduring so much pain. I will ask God to give you whatever you need. Bobbi Haworth bjch02@yahoo.com

      Liked by 1 person

    3. Bobbie Blevins, please consider seeking a qualified, medical professional, Dr. for a second opinion and discuss this and any other concern with both Drs before assuming what you have read anywhere. Educate and research your condition and any pos d ible medications you have concerns about. I am in my 20 th year living with my transplanted liver, after contractin Hep B from my husband. You live in your body and know it best, be responsible and educate and research to make yourself capable of assisting medical professionals – who are human beings as are we and not perfect, they are not all seeing all knowing and unable of making mistakes, we hold them 100% responsible wrongly. It is our responsibility to know what a medication we have been perscribed is for, the benefits as well as risks, be aware before ever putting it in your mouth and swallowing it. Be your own best Dr assistant. I wish you all the best and pray your health improves.

      Like

    4. Any, did you not experience any side effects as described on the fda website or on the paper accompanying the drug?
      How long were you taking the drug before you advised anyone that you were experiencing these side effects.
      All off the conditions that you are suffering ( very sorry about your debilitating condition,) started immediately after taking the drug?

      Like

      1. Hi Eva! I took 10 days of Cipro, and then a week later I began falling apart. I didn’t know anything was wrong until the 2nd or 3rd spontaneous rupture. The first one I chalked up to life, the second, just a fluke unfortunate incident, but the 3rd was a realization that something was very wrong. Doctors started running extensive tests, I was going to multiple specialists and surgeons, and we couldn’t figure out any reason for all of it. By the 5th injury, it was my Achilles tendon. That was the lightbulb moment for my doc. She had prescribed it right before I fell apart. When I took it in 2010, the only tendon the warning mentioned was an achilles tendon. They didn’t update the warning to talk about these side effects starting after the medication was stopped, until 2011. The damage was done while I was on the meds, but it didn’t rear it’s ugly head until 2 weeks after. Hindsight is 20/20 though. I had a kidney infection and a fever and was terribly achy and had a lot of knee pain. Now we realize it probably wasn’t from being sick with a fever, it probably the damage my body was sustaining before it all gave way.

        Like

    1. Haha! The blog went viral before my book was ready to be released. I had 8 subscribers when I wrote this post. My publisher had to scramble and rush it through production. My book mentions this but is mainly about how God got me through this last 7 years. I’m sure it looks like great timing because it is. I couldn’t have done this on purpose if I had tried.

      Liked by 3 people

  3. I got nailed by this antibiotic. I was originally treated for Achilles tendinitis and had been going to physical therapy for the past several months. The doctor, even knowing this, prescribed it for a respitory infection. I could feel the tendinitis pain back after one day, read the “side effects” info sheet which came with the drug with growing disbelief, and threw the rest of the pills out. When I called the doctor the next morning, he had nothing to say but “would you like a different antibiotic?” Grrrrr!

    Like

    1. Jan, whenever a new medication is perscribed an information sheet is given. This is to be read before ever taking the first dose and by not reading this information it is you yourself who puts your health and well being at the greatest risk. All of us are responsible for ourselves first and foremost, as well as responsible for our actions or lack of. Too often people push all the blame on medical professionals who are human beings just like us. Drs and Nurses dedicate their lives to our care, often giving 100% of themselves and it is our responsibility to educate, research and be as well informed as possible to ensure our health is the best and the risks are low.

      Liked by 1 person

      1. Donna, I agree the warnings have to be read. Unfortunately the warning was not updated to include the extent of the possible damage, until last summer in 2016. The majority of us here did not have the benefit of those warnings. Back when my experience began in May of 2010, the warning only said that, “if you experience an achilles tendon tear, to notify your doctor.” The warning said nothing about the fact that the damage could be widespread, multiple tendons, phychiatric events, gastrointestinal damage, spinal damage, ligament ruptures, Mitochondrial damage, or cartilage damage. It certainly said nothing about the damage surfacing after you completed the antibiotic or that it could cause permanent damage. Many of us also have experienced somewhat of a nightmare after this damage occurred, our doctors either didn’t know why, or refused to believe why it happened. I didn’t know for 9 months why my body suddenly fell apart. My doctor asked me on multiple occasions, “Have you ever taken Levaquin?” I didn’t even know what that was, so I always said no. It was only after my achilles tendon ruptured 9 months after the onset and was my 5th tear, that she asked it again. My curiosity got the best of me and I googled it that night. Only then, did it pull up information that talked about Fluoroquinolone antibiotics and mentioned Cipro was one of them. I had remembered she had treated me for a UTI 2 weeks before the ruptures began. I printed it off and by now it was 2011 and they had updated the warning to include “Tendon ruptures.” It was plural now. When she read the warning and verified from my chart that she had prescribed Cipro, she said, “Oh my! I knew Levaquin could cause tendon tears, but I had no idea the whole family of Fluoroquinolones could.” She clamed up and dropped me like a hot potato after that appointment. The next time I saw her she told me she, “wouldn’t prescribe any more imaging studies for joint tears because she thought the insurance would start denying them.” I had had 5 surgeries to repair joints by the time she said this. I was stunned and angry. What was I supposed to do? I needed a doctor who would continue to help me diagnose and treat joint damage and refer me to the right surgeons to repair them. I had to switch doctors. I have had to talk till I’m blue in the face and carry a printed warning to every new doctor appointment and surgery, so that when the doctors deny this is possible or flat out don’t believe me, I can hand it to them. I’ve switched doctors until I find ones who are honest and admit they know about the warnings. My jaw surgeon from Mayo clinic, once told me, “Amy, if one of your doctors states he doesn’t know about these warnings…run far away and fast. That doctor either isn’t keeping up on his PDR or he is flat out lying.” The frustration we face with this diagnosis is unfathomable at times and there is little to no financial help for those it bankrupts. This damage is so drastic, wide and far reaching, and far from rare, that it frustrates those it cripples to no end. The only option I have is to educate others and try to keep it from happening to them. My dad is a nurse, one of my best friend’s is a PA, both my sister in laws are nurses and my brother has 1 year before he is a physical therapist. My own physical therapist and his wife have become close family friends. I have incredible respect for the medical community. I know they face obstacles that are infuriating with insurance and patient loads and being short handed and they don’t time to read every new warning. We just all have to remain patient with each other and share this information in all of our own personal corners. Hopefully some day they will all connect and everyone will be informed. Please keep helping us by talking to those you work with as well. They need to be able to protect themselves from lawsuits that result from being ignorant and prescribing them in situations that are not last resort. Knowing about these things benefits us all. Thank you so much for taking the time to comment. I have appreciated your input so much. Gob bless you!

        Liked by 1 person

      2. It is through people like yourself that others become more informed, I agree that it is a real battle and only after agreeing to take part in a clinical study, and ignorantly trusting they would do everything possble to ensure I was stopped at the point that the risk factor would further shorten my life, they did for the first week, but neglected to check my blood test results on time.. The result had me rushed to hospital due to a platlet count only inth the thousands while normal is above 70000 I believe. Spontaneous bleed out was almost definite, Thank God I didn’t but the lasting damage required my transplant after only 2 years while I was almost guarenteed 15 – 20 years before facing it. Bitter pill but it was my blind faith in a human being, I don’t blame or regret anything never did. But I learned a valuable lesson I passed forward. Continue to share. We are in this together and together we may cause change. Thanks

        Like

      3. We are in this together. You are so very right. We all have to accept that it’s a multifaceted situation. Sadly we are all learning from mistakes in these situations, but it will help us to be wiser in the future. Huge hugs to ya.

        Like

      4. Please don’t put the blame back on patients who trusted in their docs, hospitals, pharmacists, etc. Many victims of fluoroquinolone toxicity have been dismissed by their docs or told it’s all in their head, that these antibiotics couldn’t cause the damage these patients are suffering with. I read the insert, told my doc I did not want to take it, he insisted it was my only choice, after which I found out I could have done home infusion with a mix of antibiotics. Many victims that I know were given this and told not to worry about adverse effects, that they are very rare and only apply to those over 60. It is NOT the patient’s responsibility to be a researcher of pharmaceuticals, and in fact many docs tell their patients to quit researching on the internet, where the most up to date studies are found. Further, these horrible adverse effects are only considered rare still because docs don’t believe their patients about the effects, therefore it is not reported to the FDA, and patients by this time may not even be mentally capable of considering to do that themselves.The FDA has issued alerts to the medical field to NOT use these antibiotics unless there are no other options, and yet, they are still being handed out as first line of defense. No, do NOT put the blame on the victims.

        Like

      5. Then absolutly no medication should be taken, everything has multiple side effects that none of us would want. Drs should be our advocates, they should discuss the WARNINGS of the medications, others options or alteratives.

        Like

      6. I was given no information sheet, as the doctor/butcher/asshat handed me this crap in his office. I’m in the medical journals (Journal of Rheumatology) now, since I’m the first person to be destroyed via eye drops. Of course, the doctor/butcher overmedicated me by more than 300 percent. The first bottle was in my surgery kit (with no information whatsoever). When I went back to his office and told him I’d used the whole bottle, he gave me a second. This was totally the doctor’s fault for overmedicating me. Who’d have ever thought that eye drops could destroy one’s life? I trusted the surgeon.
        So, no, Donna, an information sheet isn’t always given. As an extreme sufferer of quinolones toxicity, I actually find your comment little offensive. Putting the blame on the victim helps no one. My dad was a physician. He educated himself on medications before prescribing them to patients. I expect the same from the medical community but I guess I was silly for doing so. I’m curious: Are you a victim of quinolones toxicity? If not, you probably shouldn’t be accusing us for the lifelong damage that we are suffering.

        Like

  4. OH. MY. GOD! I took this for the first time (my Gyno called it in for me for UTI).
    I took it in the Walgreens parking lot and drove home. I was home for TEN MINUTES and I rapidly declined. I had my cell phone in hand and the only
    Thing I could do was text 911 to my husband; he came running to find me. I couldn’t stand, my lungs were shutting down & my heart was slowing down – by the time the ambulance got to my house they loaded me up but decided not
    To go lights and sirens. By the time I got to Barker Cypress out of Coles Crossing all I remember is the man yelling “go hot” and that was it. My skin turned white and my blood pressure was barely there.
    The emergency room at 290 and Huff. pushed some meds in me & I was getting better.
    I am telling you right now if my husband weren’t home I would have been found dead in my bedroom – no doubt in my mind. — and no one ever figured out why this happened to me. IT WAS THE CIPRO ANTIBIOTICS!! I HAVE NO ALLERGIES & my health is great. I checked to see if Walgreens gave me the wrong meds – no – and of course my OBGYN totally dismissed the whole “almost died from an antibiotic” scenario. I sounded like an idiot explaining it and of course he made me feel like an idiot. I never brought it up again –

    Like

    1. Erin, I am so sorry you went through that. That’s so scary. I have stopped trying to push this knowledge on doc’s who won’t hear it. I just ask for my records on the way out and find a doctor who knows about it already. I ask the question, “Do you know about Fluoroquinolone antibiotic damage?” and I do that on the first visit with every new doc. If they don’t or act defensive when I ask, I’m out of there. I don’t want a doctor who won’t listen to a warning that exists, or who isn t willing to learn. It always leaves me wondering what else they will be reckless and too arrogant about.

      Liked by 1 person

      1. The greatest possible fact my devoted Dr shared with me that only he in the entire 2 yrs prior to my transplant was respectful and honest enough to share was simply Donna the truth is we don’t know, we don’t have the answers I wish I could give you, not yet. It is a rare priveledge to have such raw and honest truth given to you by many Dr.s. I agree 100% with you, if anyone experiences the same, or even for a single moment doesn’t feel completely comfortable and safe with any Dr. It is extremely important to leave, don’t doubt your gut instinct, your life is whats at risk. Run screaming even, when you are facing a battle for life your allowed to have an odd sense of humor – I required mine lol

        Like

      2. Haha! I think we would get along quite well. I think health problems can give you a pretty quirky sense of humor. I am so thankful I have great doctors at this point, who have not been afraid to admit they don’t have all the answers, but they keep trying things and hoping and learning with me.

        Like

      3. My Dr prescribed Cipro for a second UTI that occurred shortly after the first ever UTI. I was 52 that year (2014), so feel fortunate I was not plagued with such an annoying, bothersome condition, but even more that I did not experience the worst of the problems using Cipro.

        Anyhow, I knew enough then, in 2014, that Cipro damages DNA and can cause all the problems you so adeptly write in this blog, so I expressed concern and alarm to my Dr for this specific antibiotic. He essentially dismissed the concern and possibility. I actually took the prescription and thanks to God, I did not experience what could have been a very horrible outcome.

        This whole scenario reminded me of how I knew in 2002 the danger of the Hepatitis B vaccine for our 10 year old daughter; a series of three vaccines are required before entering middle school. Despite knowing the danger, I dutifully went to the pediatrician for the first vaccine. Indeed, she experienced an adverse event and became medically exempt for the remaining two vaccines. Again, fortunately there were no long-term consequences. (I still felt terribly guilty!)

        I shared this blog on my Facebook timeline and my husband’s, so hopefully others are made aware. They just have to take the time to READ it! I also bookmarked this page to share again, as needed.

        Blessings to you and all who comment here and/or read your blog (or book). I love how you give all the glory to God for your healing. ❤

        Like

    2. Those are classic allergic reaction symptoms and definitely not the symptoms talked about here, which are side effects. You had an anaphylactic reaction. I’m sure the hospital and your doctor told you that.

      Like

    3. If you have children, they may also be at risk if they are ever given a fluoroquinolone. It’s suspected that a specific gene mutation is at least partially responsible for some of us being vulnerable to adverse effects of FQs, and that mutation is passed along from mothers to their children. Hope you are well now and have no more problems.

      Like

  5. I took Levaquin to treat walking pneumonia a year and a half ago. When I went into the Doc, I was feeling icky, but worked that day and was given the ok to work the next. Within 2 hours or my first dose I was so loopy and out of it. The next morning I woke up feeling 90% worse. I literally slept for 6 days straight. I do not recall anything from that time aside from my husband waking me to drink and take my pills. Day 7 I was on the mend, however I was still too out of it to work. Literally felt like an out of body experience. I lost about 60% of the sensation in my finger tips and everything tasted drastically different. It took almost 6 months for me to feel “normal” again. I had no idea the risk of this medication until a lawyer called me seeking people who have had adverse reactions. I feel blessed that I only experienced what I had but still worry about post residual damage to my tendons…. Ahhhh, crazy!

    Like

  6. I just took the last cipro for a utility infection. I am now worried as to what might happen. My doctor said the culture showed that is what I needed

    Like

    1. Barbara, I understand needing something based on a culture. Those situations are hard. I think you could ask your doctor if there is any alternative antibiotic family you could take to treat the infection, next time. I will pray you don’t have trouble.

      Like

    2. I have had terrible reactions to Levaquin and Cipro and it is on my records. I had a bladder infection and the nurse called me to tell me they called in a prescription for Cipro. I was really annoyed since it is right there for her to see. She said but the culture said I needed it. I said I would not take it. I told her a couple years before I
      had a bladder infection I had taken Bactrim and it worked and didn’t make me sick. She came back with the name of another drug and I told her I preferred to take the one I knew was ok for me. She wasn’t very happy but said ok. That was 2 years ago. I have only had those two bladder infections so I guess it worked. Don’t be afraid to question and challenge them. You have to be your own advocate. If I had not trusted my doctor who gave me Cipro after knowing my reaction to Levaquin (I was aware they were in the same family unitll doctor told me I should never have been given it) I would not have lost 6 months of my life and would be in better shape today. I do count my blessings because my problems are slight compared to a lot of people.
      Be well !
      Kathy

      Liked by 1 person

      1. I agree and applaud your encouragement and suggestion of being your own best advocate, we live in our bodies 24/7, we know how we feel that partnered with educating urselves and researching any new medication before ever thinking of putting in our mouths is the best way to assist medical professionals, as well as being aware they too are human beings and as a result are able to make mistakes, it is the best way to ensure we are being responsible for our own bodies. Too often people depend on Doctors to be super heros and know all and cure all, when our bodys react badly the blame is put 100 % on the Dr and it is not only wrong it irresponsible. Thanks for sharing suggestions rather than “medical advice wrecklessly”

        Like

      2. Donna, thank you so much, I appreciate that so much. I really try to reiterate that people have to talk to their own doctor, and I can’t give them medical advice. I can share the risks and my opinion, but only each individual patient and their doctor know what type of medical circumstances they are facing.

        Like

  7. So sorry for what you’re enduring – so GLAD for your faith in our God! This arrival came to me at the perfect time; I’m seeing my Dr tomorrow for issues from Levofloxacin. Knarly side affects. Hoping I’m wrong but gut says not. Best of luck to you!!

    Like

  8. This class of antibiotics does carry increased risk for tendon rupture, among other things, but the author of this article is making dangerously broad statements, claiming that the damage happens to ALL people who take drugs within this class. I feel compassion for her situation, & can’t blame her for believing that, considering the severity of her adverse reaction, but asserting it WILL happen to EVERYONE who ever takes it as medical fact is willfully spreading misinformation, regardless of intent. Her trauma & ability to Google articles does not qualify her to make that kind of call.

    This class of drugs has saved countless lives with no ill effect throughout the course of the patients’ lifetime. People should be aware of the risks, but to discount an entire class of lifesaving drugs entirely for anyone who may need this, based on whatever susceptible organism they’re infected with, is horribly misguided.

    Like

    1. 100% of people who take Fluoroquinolone antibiotics such as Cipro, Levaquin, and Avelox, suffer some sort of change to their tendon tissue during therapy. A quote from this study by NCBI, states that every tendon sample exposed to Fluoroquinolone antibiotics showed changes to the cells. This means that 100% of their samples showed changes when exposed to Fluoroquinolone antibiotics. The degree of damage only varied in severity depending on how long the samples were exposed to the antibiotics and how strong the concentrations were.
      Their quote: “At concentrations, which are achievable during quinolone therapy, 3mg ciprofloxacin/L medium significantly decreased type I collagen; similar changes were observed with 3mg ciprofloxacin or 10mg levofloxacin/L medium for the beta(1)- integrin receptors. Effects were intensified at higher concentrations and longer incubation periods. ”
      They go on to say: “Our results provide evidence that besides changes in receptor and signalling proteins apoptosis has to be considered as a final event in the pathogenesis of fluoroquinolone-induced tendopathies.”
      So to conclude…your chance of sustaining damage to your tendon cells during a course of Fluoroquinolone antibiotics…is 100%

      Here is the link to this NCBI study
      https://www.ncbi.nlm.nih.gov/pubmed/15890441

      Like

      1. I thank you for the kind words. Praise the Lord for blessings as well as miracles recieved. God is so Amazingly Loving to each one of us. I am inawe of and have great respect for all you have endured and overcome. I am so pleased that you not only shared your incredible story, and did so Honoring with Gratitude all was possible because Gods Love is So Great! Then after sharing and giving GOD PRAISE! You went on to share a third time, by supplying endless sources of information, you are truly an amazing woman to do each one of these things alone and to offer all three you have offered others all you culd possibly share to responsibly and effectively spread this vital, life saving information. You have truly made the world a better and safer place. God surely is pleased by your selfless service. Thank you for being the voice that I too believe was possibly handpicked for the job, because my heart is ull of hope for those suffering and its is joyful for those who will never be at risk. It is only with God in our hearts and lives that we can begin to turn what could have destroyed us into the blessing that we realize it became. When I was finally put on the waiting list for a liver transplant, I in humor said to my amazing Dr.”Just for chuckles, with all the “special and different than ever before my tests often were, me being at this point was even more impossible than me winning the lottery?” His reply was ” You could have even possibly won twice” and he and I laughed. I often joked about being picked even though my hand wasn’t up and I am grateful for being picked each and everyday, as well as how blessed I came to realize I am. Miracles are granted each day,don’t ever allow doubt to entire your life. Prayer works and we are both among others who are living proof. Thank you, I wish all the best for your tomorrows, may you enjoy many. Be Humble Be Kind Be a Blessing to others when called and May God Bless You. With gratitude and love D

        Like

  9. The last time — and I do mean the LAST time — I took Cipro the ventral side of both forearms began to burn, especially when I flexed my wrists or fingers. I’m an occupational therapist, so I knew what was happening, but I didn’t know why. The Lord provided that answer. Lying on the dining room table were two pages of plain white paper, the second and third pages of a document about a new “black box warning,” about Cipro, of course.
    The Lord provided what I needed when I needed it then; I hope I’m not going to need any of what I’ve learned today any time soon!
    I spent months in hand therapy; I believe that cold laser probably helped the most. I currently have minor sharp pains in the tendons in my hands but am fully back to my baseline otherwise. But I must say that I’ve learned a lot here today. I wish I could go back over my calendar to determine the relationship in time between a course of Cipro and two tears in my rotator cuff during a mammogram. I live with multiple sclerosis, so it was blamed on that injury. But now I wonder….

    Like

  10. THANK YOU for this FB posting, I just saw it for the first time! In a lot of ways, my own life with medical problems from using these meds mirrors yours,! I’ve had an Achilles’ tendon rupture (I was on Levoquin when it happened & my dr took me off it right away, put in my chart under “allergies, no more meds in this family cuz they cause tendon ruptures”). I’ve had 9 surgeries in 9 years (3 spine including a fusion the last time with “degenerative disk disease” ), 3 knee surgeries (including a replacement), Mersa, pneumonia (last year spent a week in the hospital in complete isolation & also had C-diff, type 1 influenza, Crohn’s flare up), pancreatitis last year (I was in the hospital 2 times in 6 months)!! This year I started with bronchitis that led to Whooping cough then pneumonia (I was sick four months). I have Crohn’s colitis in my tummy & colon. Through all of this God has & continues to heal & sustain, one day at a time, & I’m able to have a life & enjoy my family!! I ask my doctors a lot of questions now and they have all been quite supportive,. I do understand that my health issues the last four plus decades has been challenging for my dr’s, & myself, ( life threatening at times) but I truly wish I could turn back the clock & do things differently, I’d probably be healthier now!! I do more natural health things (I always have done some) in hopes to regain or at least slow down anymore resulting effects in my body from these meds, with God’s help!! Thank you again for bringing this awareness to me and others!!!!

    Like

  11. My elderly mom took Levaquin several years ago. I don’t remember why she was put on it while in the hospital. I am an only child and I was at home taking care of my dad, thinking my mom was being taken care of. I mean she was in the hospital, right?! She kept deteriorating to the point of coughing up “coffee grounds” looking stuff. When she told me that, I looked at my dad and said we need to get her out of that hospital before she dies. I then called a cousin and asked him to meet me at the hospital for backup. I went in there with both barrels loaded too!!! The head floor nurse was an acquaintance of mine. I told her i wanted my mama out of that hospital before she died! She contacted mama’s doctor. He came over and offered to move her to another floor. I said NO I WANT HER OUT OF THIS PLACE!!! Another cousin had contacted her doctor in another town and he took her on as a patient. She went by ambulance there. Got her there and she had a bleeding ulcer! Had NEVER had an ulcer before either!!! We said from that time on NO MORE LEVAQUIN FOR OUR FAMILY!!! Glad to read this blog. Thank you for sharing!

    Like

    1. Don’t place all the blame on doctors or hospitals, we are also responsible for being aware of all medications, the benfits and risks before taking the 1st dose, procedures and treatment of any kind that is perscribed we also should be clear on. We live in our bodies and it is first our responsibility to educate and research as well as be aware at all times. Doctors are human and capable of mistakes, as well as Nurses, they work their asses off giving the best possible care they are capable of and its each one of ours responsibility to be accountable for medicagkon we put in our mouth and swallow, surgery that we approve of by signing forms. When our parents are unable to do this for themselves it becomes our responsibility. To many people blame and run to court to ruin and punish Doctors for being human, that should only be a result of Doctors disregard and inability or negligence. We all need to step up. Best wishes and I pray you have the privilege of having your parents for as many years as possible, for the loss is the greatest

      Like

  12. First, thank you for this information. You are right in believing God is using you. He can take the worse possible experience in our lives and make something positive come from it if we let Him. I worked for a urology practice from 1995-2000. They prescribed Cipro like it was the only antibiotic on the market. Drug reps would come to the office bringing elaborate lunches with stacks of samples. I am becoming angrier by the minute. Healthcare in general is one big racket!! The FDA, our medical community who took an oath to “do no harm” and the so called elected officials in Washington are in bed together. I am sickened when I read about meds that have clinical trials to prove they help/heal illnesses but can’t get approval. Basically because the findings are by small drug companies and not by the top three. Then we have drugs marketed before long-term effects can possibly be known. I call it the Oops 🤷‍♀️, who would have guessed? syndrome. Statins are another prime example. I learned so much while working in the healthcare industry. #1 is that you have the right to say NO, to anything. #2, Doctors are not God! #3 is listen to that still, small voice speaking to you. #4 You can never have too much information. If the doctors won’t take the time to answer your questions find another one. Last, DO YOUR HOMEWORK. We have a world of information at our fingertips. Keep reading until you find it. God Bless.

    Like

    1. Sadly I think most prescribe it with no knowledge of the warnings, and that’s why we as patients need to be our own advocates. The FDA and drug company have done a fantastic job of burying these warnings and the true rate at which they occur. They are running an incredibly murky system. We can’t count on them to regulate each other when their financial interest creates a conflict of interest.

      Like

    2. They are creating antibiotic resistance…and it is opp of what docs should be doing…becoz once superbugs are created which can have scary incurable cases. It is happening already.. the stuff of horror stories.

      Like

  13. Luckily if I have an uti the doctor I see prescribes me a macrobid but if I cannot see a doctor like this past weekend I drink lots of water or. Cranberry juice you can get azo cranberry pills now have vitamins. My dad takes two cramberry vitamins a day.

    Like

  14. God be with you ma’am, and may you see healing! You are one of the most courageous people I have ever seen! You are an encouragement! Stay strong in God and he will protect you.

    Like

  15. Are there any lawsuits going on with these drug companies? Why would anyone WANT to take one of these drugs even as a last-ditch effort?

    Like

    1. It would depend on what you were prescribed it for and when. If it was for one of the couple of diagnosis in which it has been advised against (uncomplicated sinusitis, bronchitis, and I believe UTI and minor skin infections) and if it was after the FDA released the new recommendations in 2016 then you could have a case but there are still a lot of other conditions in which it is approved for first line use.

      Like

  16. Omg! I’ve been taking moxifloxacin for 2 days. Do you think I should stop now or will there be a risk of antibiotic resistance? 😦 i’m really scared now

    Like

    1. I really can’t tell you what to do. If it was me, I would call the doctor in the morning and ask for a Fluoroquinolone antibiotic alternative and be staunch in asking for one. They get annoyed sometimes, but usually they get over it once they realize you are serious.

      Like

  17. I took Leviquin one time and after about 2 days my husband did all but carry me into the ER. It had affected all my muscles in my legs and arms and I couldn’t walk! The doctors told me ” welcome to the 1%”. After I got out of the hospital, I knew 4 other people, in MY circle of friends, that had the same reaction. The 1% is BS. Stay away from that stuff!

    Like

    1. You are right! 1% is BS. What that really means is that 1% report adverse effects to the FDA, however, the majority of those affected don’t report because their docs tell them it’s not the antibiotic causing their symptoms. More accurate number of those who are adversely affected is likely at least 10-20% according to FDA’s statement that between 5-10% will ever report.

      Like

      1. I honestly believe the side effects are sustained by every single person who takes it. Everything I can find says the damage is compounding and seems to just vary person to person on how long it is before they notice something is wrong. When they have exposed tendon to varying Fluoroquinolone at therapeutic concentrations, all of the samples showed changes. It only varied by length of exposure and concentration levels. I’ve shared that NCBI study numerous times here and on my Facebook page.

        Like

  18. I saw these warnings when my doctor prescribed Levoflaxin and questioned them. They actually said, I guarantee nothing like that will happen short term. And when I had serious side effects DAY TWO both the doctor and pharmacist acted like I was nuts and it couldnt be from that. I had sharp shooting pains while putting my baby to bed and fell to the floor. Couldnt move my lower back. Finally managed to walk to the bathroom 10 ft away 7 hours later and blacked out and hit my head on the tub. Its been nearly 48 hours since my last dose and im so incredibly sore. Sharp pains in my lower back mostly. Im incredibly scared that this is permanent. Thank you for warning others.

    Like

    1. Look into taking some N-aceytl cysteine quickly. It is used as a detox even in hospitals. Magnesium is very important to take as well. Do some google searching and consider joining a support group. This may not be permanent, but you may want to learn what to avoid and what can help by joining a support group, the Fluoroquinolone Toxicity Group, https://www.facebook.com/groups/floxies/

      Like

  19. I appreciate all of this information. I have taken this drug 3 times since April for UTI’s . Never again & prayers I have not done any damage to my body!!!!!

    Like

  20. My husband and I were prescribed daily Cipro from 9-12 times from 2003-2011 as a derterrent to stomach upset/bacterial infection when we were going on mission trips to 3rd world countries. We do have issues of all kinds. Joint problems, miniscus tears, back issues, gastrointestinal, depression, etc. however at this point we are able to function fairly well. We trusted our doc and assumed our issues were because of growing older. I have only recently learned of these effects of cipro. This info makes me scared of what the future holds but as a Christian I know the Lord will get us through one day at a time. Thank you for your sounding the alarm and telling your story. It has surely opened my eyes.

    Like

  21. The hospital gave Levaquin to my husband for a sinus infection. After a few days he felt so bad with other symptoms that he returned to the hospital. They told him he was having a heart attack. After some investigation, I told the doctor I believed the symptoms were side effects of the medication. Of course they said “I’ve never heard of an antibiotic causing a heart attack”. Doctors should really know the side effects of medication they prescribe.

    Like

  22. And yet, if it weren’t for antibiotics of that type, I’d be dead right now. Literally. 2 years ago I had a severely complicated case of diverticulitis that became a metastasized peritonitis where the infection got loose and made its way into several abscesses in my liver. If it weren’t for massive doses of the very strongest IV antibiotics, I wouldn’t have survived.

    As with anything, there are risks involved. But I’d rather not be dead. And I’m grateful as hell for those antibiotics, because otherwise I’d be dead.

    Like

    1. Gene, I am very glad you are doing well now. I want to be extremely clear that I am not trying to get these antibiotics taken off the market. I am trying to educate people on the risks the FDA has already published and issued a warning about. The FDA warning states that these antibiotics should be saved as a last resort, such as in cases like yours. The warning can be found here on their website: https://www.fda.gov/Drugs/DrugSafety/ucm511530.htm . I will insert their quote from the second paragraph of their safety warning, “We have determined that fluoroquinolones should be reserved for use in patients who have no other treatment options for acute bacterial sinusitis, (ABS), acute bacterial exacerbation of chronic bronchitis (ABECB), and uncomplicated urinary tract infections (UTI) because the risk of these serious side effects generally outweighs the benefits in these patients. For some serious bacterial infections the benefits of fluoroquinolones outweigh the risks, and it is appropriate for them to remain available as a therapeutic option.” I am not spreading any information other than the already published warnings and scientific research. I am glad you are not dead. That is the type of situation these antibiotics actually should be used for. There are risks associated with every medication, and I believe it’s in our best interest to know what we are consuming, and the possible results of it. I am aiming to educate. I didn’t have the benefit of knowing this information when I took it in 2010 for a UTI. It wasn’t until nearly 7 years later that they updated the public with all of the possible side effects.

      Like

  23. I was hospitalized last year & treated with huge doses of iv cipro and flagyl in order to avoid an appendectomy. I ended up having the surgery just over a year later and given another round of cipro, I wish I just had the surgery the first time now. I wonder if and when I will have the effects. God bless you and thank you for being a voice

    Like

  24. Stephen Hartman Cipro attacked my hip, and it never fully recovered; however, I have used a product called nerventrax, which is loaded with vitamin B, as well as Osmo patch from Australia which also helped. Basically it is a neurological problem that vitamin B helps rebuild. Over the years, it has improved with no surgery, but very slowly. The patch also helped. Cipro and associated drugs should be banned. What they need is a good class action suit.
    As a result I have not taken antibiotics since 2003. I use silver water, which is much more effective and has absolutely no side effects. Stay away from the doctors. They only make things ten times worse.

    Like

  25. The insidious thing about these antibiotics are that some of the side-effect symptoms might not occur until days or weeks AFTER you stop taking them! That’s what happened to me although luckily mine, while permanent so far, have not been debilitating.

    Like

  26. In 2003 I took only 3 tablets before it ruptured the tendons in my groin on both legs. I did not walk again for 8 months and am still on a walker today. I had to have hip replacement in 2007 on the right and the left is bad, real bad. Apparently the Houston lawyers said they couldn’t help. It had been to long. I guess they think you heal from this. YOU DONT! I don’t care about money, I just want people to know about it. I take only amoxicillin now. I’d rather die than go thru that pain again.

    Like

  27. Thank you, thank you thank you a million times, and infinity more for sharing. I’ve taken cipro many times in my 20’s for uti’s. Now I’m in my 30’s and everything hurts. I feel 70. I’m questioning if cipro has anything to do with that pain. Thank you for sharing this crucial information with me. I’ll never take cipro or any others like it again.

    Like

    1. Jennifer, It’s quite possible, maybe even very likely, that your pain is from the Cipro. You can join the FB group, https://www.facebook.com/groups/floxies/ to get some of your questions answered. 8000 members all suffering from the effects of these antibiotics, sharing info about what works and what doesn’t to try to heal. What is generally not helpful is RX & OTC drugs. Many get at least some relief from giving up the standard American diet and opting for a highly nutritious diet of whole foods, nothing processed, organic as much as possible, avoiding exposure to more toxins & chemicals even in personal care & household products. I hope you can get some relief, I did.

      Like

      1. Is this like mitochondrial disease that some children are born with? Can stem cell treatment work on this cipro caused problem?

        Sent from my iPhone

        >

        Like

  28. What people fail to realize is that they have to educate themselves. The doctors depend on the pharmaceutical reps to tell them what they need to know about the drugs they prescribe. Hello….the reps are just trying to earn a living in this crazy world. My husband took Cipro, he ended up having severe problems with his achilles tendon. Why the docs don’t rely on the old standard antibiotics is beyond me; guess they think newer is better   This being said, BEFORE you get your prescription filled do your research, PLEASE

    Like

    1. Unfortunately, most information from websites that are considered to be reliable don’t have all the facts about just how dangerous these drugs are, they state that adverse reactions are very rare, mostly warn against people over 60 with other health conditions. So young people who are very healthy believe (and the docs tell them this too) that there is nothing to worry about. This needs to change to protect patients from harm. Doctors don’t want us using “Dr Google” and yet here we are, having to do research ourselves and then many disbelieved by their docs when they do have adverse effects, told “it can’t be from the antibiotic”. The elderly and children who may not even be capable of research are also victims.

      No, we shouldn’t have to do research, these drugs should be so tightly controlled, should have mandatory bacterial culturing, and a paper trail showing all steps were taken to insure that this class of antibiotics are needed, and the pharmacist should have to see that documentation before being allowed to dispense. The FDA has completely failed in stopping this catastrophe, allowing it to continue to be used without requiring studies to find out how & why so many people are damaged.

      Like

  29. My husband was given a topical cream. I don’t have it to be certain but I believe it was a fluoroquinolone.. He was told to wear latex gloves when applying to his scalp (he is bald) after a precancerous area was removed. He threw away the packaging & insert & then forgot that the dermatologist had said to use for 2 weeks. He was “using it till gone”. His forehead was turning bright red & peeling like a bad sunburn. Luckily, he went back to his GP for another reason & he told him to stop & throw it away. He gave him a different cream. “Clindamycin”… Wow! from one to another. Are the topical applications also as dangerous?

    Like

    1. If it was for a precancerous spot it was 5-fluorouracil aka Efudex. It is supposed to turn red and peel as if it is a sunburn because it is getting the precancerous cells to the surface of the skin then destroying them. He’s not lucky at all that he was stopped and he needs to go back to the dermatologist to have another skin exam because it could be cancer now.

      Like

      1. Has female hair loss that follows pattern of a pattern baldness ever been noted as a symptom of this antibiotic toxic reaction?

        Sent from my iPhone

        >

        Like

    1. Acupuncture has helped my all over health and specifically tinnitus. The person that has helped me the most to get healthy and stay healthy is an acupressure massage therapist who is trained in Chinese medicine. She is
      very qualified being trained in China. Visiting the hospitals several time. Her mentors in the US were a Chinese
      couple. The lady being a biologist at the U of I. So she really knows her stuff. So I guess you just want to make sure who ever you go to is well trained. Good luck!

      Like

    2. Yes, Maju, female hair loss is not uncommon after taking these antibiotics. As far as acupuncture goes, it may help some to minimize some of the symptoms, but I don’t believe that acupuncture can help with the mitochondrial damage done to many victims of this class of antibiotics.

      Like

  30. I’m just finding out about these antibiotics that are so deadly. I have chronic UTI’S and every time I get one, I’m put on Cipro. I have just about all the symptoms that have been listed. Is there a Class Action Suit that I can get into? And, if so, how do I go about joining in? I have shared this information with everyone I know and have asked them to share with their friends and family.
    Sincerely,
    Beth Owen – Las Cruces, New Mexico

    Like

    1. You can do a google search for a class action lawsuit in the state you are in. If you took a generic brand of fluoroquinolones you cannot sue the pharmaceutical co in most states. Check into it tho, there are a few lawsuits going on. You might also want to join a Facebook support group for help in dealing with your symptoms, there are over 8000 members there, some with long term knowledge of what has helped or harmed them further after taking fluoroquinolones. https://www.facebook.com/groups/floxies/

      Like

  31. I read most of your links and would ask your thoughts about the updated information on the FDA warnings (dated 2017). Also your sited references are heavily relied on one source (www.ncbi.nlm.nih.org), so I’d also like to ask why you favor this source? Lastly, I’d like to just say that while I applaud your extensive listing of source material, I find it interesting a lot of these are dated 10+ years ago. Do you have any more recent sources (legitimate major publications, peer reviewed medical studies and/or journals) that you could share. I agree whole heartedly you are your own best advocate.

    Like

    1. Hi Rachael, thank you for commenting. I have gravitated toward NCBI because I wanted medical studies, and they also have done a fair amount of compiling studies in an easy place to find. Most are from 10 years ago, because that is when they were first realizing these antibiotics could cause some major problems. The first major clue came when they gave Cipro to the postal workers after 9/11. A class action was started because of it. I also believe that they were realizing that Gulf war vets had lasting effects from these medications, that weren’t going away. I have over 23 pages of links to other sources, but I didn’t put them all on this blog. I do publish them on my public Amy Moser Facebook page though. You are welcome to check that out. If you click “like” for my page, you will get my updates with Fluoroquinolone information. If you have a private email you want to share, I could send you the 23 pages. It’s just too big to put them on this blog or people would have to scroll for days to get to the bottom of the post. I hope this helps.

      Like

  32. My husband had a severe prostrate infection about 16 yrs ago and they had him on cipro for (3 years), yes, 3 years. Two years ago he started having blackout spells and passing out, now he has progressed to grand maul seizures, and they can find no reason for it. Could cipro be the culprit after all these years. He also has some other issues going on. When he was given the cipro I was concerned that it was given to him over such a long period of time.

    Like

  33. Unfortunately, I am allergic to Penicillin, Sulfa, and the Cephalasporins. I use Clindamycin. But, I am wondering if I may have had any of those in the warning because of my multiple knee, back and shoulder surgeries and PT for my hips now.

    Like

  34. I hve taken in the past Avelox, Cipro and Leviquin. Last year I was diagnosed with an auerysum. So far it has remained the same size and the doctor doesn’t think it will get larger. I pray every day that it doesn’t.

    Like

  35. My sister took one of these and got Steven johnson syndrome…look that up! she lived thank God.. I took regular old Augmentin for a sinus infection after years of no anti-biotics and got drug-induced hepatitis. Was in bed for 3 months! am fine now but AB’s never again!

    Like

  36. Wow. I’m printing this and sending to all my doctors. Also sending to my pharmacy and sharing with family and friends. I’m also wondering if my mother was on this before she died. Incredible and tragic. Thank you so much for this and so sorry for your suffering.

    Like

  37. I have had 3 patellar tendon repairs & 1 Achilles’ tendon repair in a two year period . I have taken Ciprofor various infections, including Pneumonia , over the past few years. I am very interested in this information.

    Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s